Links
[all links open in a new window]
Foundation Mission: To find a cure for scleroderma, a life-threatening and degenerative illness, by funding and facilitating the most promising, highest quality research and placing the disease and its need for a cure in the public eye.
To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
The Road Back Foundation promotes education about the treatment of rheumatic and some connective tissue diseases with low doses of antibiotics; serves as a patient and physician clearinghouse for the exchange and dissemination of information on research and the advances in treatment using such therapy; supports such research; and advocates for objectives stated above.
Juvenile Scleroderma NetworkIt is hard enough to face the effects of juvenile scleroderma, but facing them alone can be devastating. We invite families nationwide to become involved and help provide support and friendship to children who have juvenile scleroderma.
The mission of the ACR Research and Education Foundation is to attract and support the training and development of qualified physicians and other health care professionals, and to support research designed to investigate the causes, improve treatment and work toward the prevention and cure of rheumatic diseases.
Arthritis FoundationThe Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
Medline Plus, National Library of MedicineMEDLINEplus has extensive information from the National Institutes of Health and other trusted sources on over 500 diseases and conditions.
National Institute of Arthritis and Musculoskeletal and Skin DiseasesNational Institute of Arthritis and Musculoskeletal and Skin Diseases
The ISN's dynamic team of volunteers empower our worldwide scleroderma community by providing medical, support and public awareness information via our Scleroderma from A to Z website and print publications in many languages. We offer free web pages, website listings, and special events promotion for scleroderma organizations in all countries and languages.
SCOT Clinical TrialSCOT is a clinical research study designed for people with severe forms of scleroderma. SCOT stands for Scleroderma: Cyclophosphamide Or Transplantation. The SCOT study will compare the potential benefits of stem cell transplant and high-dose monthly cyclophosphamide (Cytoxan) in the treatment of scleroderma.
New Gene Research Associated with SclerodermaResearchers at Princeton University used DNA microarrays to characterize gene expression patterns in skin biopsies from individuals with a diagnosis of systemic sclerosis with diffuse scleroderma. They found consistent differences in the patterns of gene expression between skin biopsies from individuals with scleroderma and those from normal, unaffected individuals. For more info see http://news.bbc.co.uk/1/hi/health/3148660.stm or click link to the left.
OurHealthCircleOurHealthCircle. is an online community that allows people to openly or anonymously discuss and share health issues, encouragement, support, and valuable personal experiences with others who have similar health concerns.
But You Don't Look SickButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and hopes to provide answers to the endless questions of: But you don't look sick?
Rest MinistriesFaith based organization focused on needs of chronically ill individuals.

For problems, questions or suggestions regarding this website, contact the webmaster.